Showing posts with label questions. Show all posts
Showing posts with label questions. Show all posts

Tuesday, October 13, 2009

Questions!!!!

To ALL you CHD parents and CHD adults out there: Do you have ANY questions that you were pondering my experiences with my CHD journey? ANYTHING!?!? If so, ASK it and I will answer them ALL and write up a post! =D Mind you these are my experiences and opinions only, I'm not a doctor and ALWAYS ask your childs (or your) cardiologist. I just know that doctors can't answer everything and get inside of the head of someone who has been there and done that.

So, if you have a question or questions either leave me a comment or e-mail me at (just delete the spaces in my e-mail address... I had to do this to keep from computer robots sending me spam): lceleskey 87@ gm ail.com

I came up with this idea when I was reading a CHD mom's blog about her CHDer might not be able to every ride a roller coaster. Now, I am NO DOCTOR, but to the surprise of many of you... I HAVE ridden a roller coaster! Actually, I've ridden almost all of the roller coasters at Ceder Point more than once! My cardiologist told me that I could ride most of the coasters, but the day I come off having chest pain is the day I'm never to go on one again. Well, I rode my first one when I was 13 and rode my last when I was 20. Honestly, I could have never gone on one and would have been fine, but what can I say I'm a dare devil in my own right haha. PLEASE KNOW THAT NOT EVERY CHD CHILD CAN RIDE A ROLLDER COASTER, THE ROLLDER COASTER QUESTION SHOULD BE POSED TO THE CARDIOLOGIST AS EVERY CASE IS DIFFERENT!!! I was just stating that it IS possible IF they are in GOOD heart health and the cardiologist says it's OK!!!

Considering I'm a one ventricle fix (though I'm a three chamber heart... that's how they use to do the Fontan) with a classic Fontan Pillation (old version). I've been quite surprised at what I can do... my cardiologist sure did surprise me with telling me I could ride a coaster... blind faith I guess, but I was doing VERY well and he DOESN'T tell everyone!!... EVERY CASE IS DIFFERENT, EVER KID HANDLES THEIR CONDITION DIFFERENTLY NO MATTER THE DEFECT!!! With that being said... BRING ON THE QUESTIONS, I DARE YOU!!! LOL!!!

With LOTS of Hope, Love, and Faith,