Tuesday, February 7, 2012

Feb. 7th... The Start of Congenital Heart Defect Awareness Week

Today... February 7th... is the start of National Congenital Heart Defect or CHD Awareness Week!!

So for those who may not know what a CHD is... here are some Facts for you:

-Congenital Heart Defects are the World's Number ONE birth defect and birth defect killer!!

-About 1 in 100 babies will be born with a CHD and 4,000 in the U.S Alone will not see their first birthday

-There are about 1 Million CHD Adults and 800,000 CHD babies/kids in the U.S alone

-There are about 40 CHDs and NO CURE for any of them!... they range for mild to severe

-About 50% of CHDers will need at least ONE invasive surgery in their lifetime!!

-Inpatient surgery for CHDs exceeds 2.2 Billion dollars a year!!

-CHDs Kill more kids than all forms of Childhood Cancer combined!!

-Only 1 penny of every dollar donated to Heart Disease goes to CHD research!


-Over 50% of CHDers are Adults!!

-8 out of 10... or about 85% of CHDers WILL make it to Adulthood!!

-The earlier a CHD is detected the better the outcome "can" be!!

-I'm 1 in 100!!
-I was not diagnosed till 11 weeks old and dying.
-I have one of the severe Congenital Heart Defects.... Tricuspid Atresia, Hypoplastic Right Ventricle or "half a working heart"/single ventricle repair
-My CHD is one of seven that are considered Critical CHDs that 9 out of 10 times can be detected by a simple Pulse Ox... which is a simple non-invasive and cheap test... it is like a bandaid with a red light that tests how much oxygen is in ones blood.


**THREE GREAT LINKS:http://pulseoxadvocacy.com/ ,

Here is my CHD Journey in Montage Form (or you can read my CHD journey here:http://laurensheart.blogspot.com/2009/11/my-chd-journey.html)

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