Friday, July 1, 2011

A Quick Bunched Up Update... Another MRI...

Hello Everyone!

Happy July! Woah can't believe it's already July! I will be 24 next month... where did the year go?! Geez... time slow down a little! I've been super busy still, but wanted to write a quick update... there is a bunch of stuff to quickly talk about, so I'm sorry if this update is all over the place.

I finished my first summer class on Monday! Woohoo! I did well! :)
I start my other two summer classes on Tuesday... if one wasn't busy enough, I will have two... but need to get that college degree in December. I keep telling myself only 7 more classes away from a college diploma now! :) So excited! I decided I want to be a Pediatric Social Worker or a Child Life Specialist as a career... hopefully that works out... I think I would be good at both, just have to see which one I can get. Fingers crossed! :)

Last Sunday I saw my mom's side of the family for my Grandma and
Uncle's birthday... it was so nice. I got to see my niece again! Oh my Lily (my niece) keeps growing! :) Here is a picture of here and I... not a great one as she looked away haha. Oh got a new haircut last week, so that is a good picture of my new do.

So, I tried my hand at making sem-homemade cinnamon rolls last weekend. I had dark brown sugar, cinnamon surgar, butter, and pizza dough balls... they smelled great and looked great (see below picture), but they tasted nasty haha. Not sure what I did wrong, but I'm almost certain it's the pizza dough... I've learned to never use pizza dough for cinnamon rolls... it was worth a shot though. I had fun even though it was an epic fail ha! Now, I need to think of my next food experiment haha. ;)

**Health News: So in my title I say Another MRI... let me explain the best I can. I had gotten a call 2 weeks ago about my lab/blood results. My Cardiologist's Nurse Practioner said everything looked fine, but I asked to get a copy of my results sent to me so I have a record of them (I try to get a copy of all my medical records). A few days later in the mail I get my lab/blood results and I look over it, then decide to compare with last years. My new Cardio has never seen last years as I had them done before I first met him... that's why I wanted to compare. I noticed that my Bilirubin (liver function levels) were slightly high last year, but that is Normal for most CHDers especially Single Ventricles who had the Fontan like I did... but I noticed a big jump from last year to this year, not a huge jump but almost a point higher which "can" be concerning. So I called my Cardio's Nurse Pac... we ended up playing phone tag for a few days (hate that). I finally told her my concern and wanted her to ask my Cardio what numbers should I start being concerned... the nurse said she would ask and call back in a day or two. Well, I get a phone call 2 days later by one of my Cardio's secutaries wanting to schedule my Liver MRI.... UM WHAT?! She said "Oh I'm guessing you don't know..."... Well later that day my Cardio's Nurse Prac. calls me saying sorry for scaring me and not getting to me first. My Cardiologist had went to conference about a week ago... the topic of Fontan-ers (my second open heart) and livers were brought up... that even a slight jump in Bilirubin from year to year "can" be concerning and eventually effect my heart (which is going well). So, they the increase in my Bilirubin is high enough to be concerned to get a Liver MRI as a precaution... that way if there is anything it will be caught in time before it effects my good heart function. Makes total sense. So, on July 15 at I go back to the hospital for a Liver MRI (well it's called an Abdomen MRI). I'm hoping everything is ok and this is just going to be a baseline MRI for my Liver.

Alrighty, I have a busy busy weekend and week ahead of me. I hope everyone had a safe and wonderful 4th of July weekend! Sending thoughts, prayers, and **Heart Hugs** to all!

With LOTS of Hope, Love, and Faith,
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