Last Pic & Info Request !!!
***I'm still in need of pictures for my new CHD Montage. If you'd like to be apart of it I'll need:
- A picture(s) of your child (or you)... any kind you want it fine.
- Your child's (or your) name, birthday (and angel date if they passed), and CHD
You can e-mail me at: Sweeetie2516@aol.com Thank You!!! =D
**I'd like to have all pictures & info in by the end of the month**
*A HUGE Thank You to those who already sent me pics & info!!!!*
Wednesday, August 5, 2009
August Already?!?!... My Bday!... Some Ramblings...
Life always has changes and to tell you the truth, I've never really liked them unless it was a good change that I wasn't afriad of or got me worried. I have to say that growing up into an adult has been hard and my CHD hasn't made things easier.
When I was little and just finding out about my CHD and what it all means I had nightmares. I had these nightmares for years. I remember my dad sleeping on my bedroom floor so I could fall asleep without being scared or if I woke up someone was right there. My dad didn't do this all the time, but most nights he did. As I got older I developed alot of worries about everything not just my CHD. I've been dignosised with an anxiety disorder about a year ago. It came as no surprise to me as I've always been a parnoid worrier. Coping with it has been hard.
I've always have had things to cope especially the past couple of years dignosised with SVT's (fast heart rate) and muscle spasms along with eye surgery, a bad allergic outbreak, an ER visit, my parents divorcing, my cousins house burning down, my beloved great-grandma dying, etc. all in 5yrs.!!! BUT I've taken things in stride. I'm still holding onto faith...
It’s finally August which means my birthday is fast approaching! I’ll be 22 on the 25th of this month! That is a big milestone in the CHD world. Am I fearful or what my future might hold, absolutely, but I’m very grateful to have another birthday. I will continue to share my CHD story and raise awareness the rest of my life. I will also continue to live my life to the fullest with lots of smiles, love, laughter, tears, frowns, and trying not to have any regret!!! =D
**You know a lot of CHD parents tell me and other CHD adults how they are fearful of letting their child go as they grow up, needless to say ALL parents do, but even more so with a CHD kid. They worry all the time (what parent doesn’t) and they want to make sure they are protected (again what parent doesn’t). The point is CHD parents seem to want to overdo it more with their CHDer, understandable as my mom did… BUT we CHDers want to be treated as much as regular kids as possible… SO CHD parents: Let them be KIDS, let them LIVE, let them EXPERIENCE things... sure there will be times where they will test you (we are good at that), BUT we were given this heart to LIVE, LEARN, LOVE, GIVE, and TEACH like others can’t! So, let us be US and TEACH them their limits, but don’t go overboard… as I heard from one heart mom: stop asking “why”, you’ve got ONE life to LOVE so LIVE it!!!**
...IN OTHER NEWS: As for what I’ve been up to lately, not too much. Things have been crazy busy now and then, then slow other times… that’s how my summers usually go. Last week my bf and I helped my mom out with her 2nd garage sale of the summer. Then, my boyfriend, Chris, did go for Marine weekend training this past weekend. Sunday my mom and her bf cooked a whole bunch of yummy food and we had a BBQ! I haven’t heard from Medicaid about a hearing date, ugh. I did get my cardiologists letter, to help me get Medicaid, in the mail last week. It was a short, but good letter. I need to write him a “Thank You” letter (or maybe I already did… that’s bad that I don’t remember LOL). Today I found out I got a huge Pell Grant to help my pay my College tuition this year. I was happy about that! Other, than that I’ve been getting ready for my bday, my brother’s gf’s baby shower, and a small trip I’m going to take in Sept (more about that later). My health has been great and I pray it continues to stay that way as I have no Health Insurance.
A HUGE Thank You for all the messages of support, e-mails, and much heard prayers!!! You know it ALL means a lot to me and puts a smile on my face!!! =D
That’s it for now… Sending many **Heart Hugs** and Blessings to everyone!!! I continue to pray for SO many kiddos , adults, and their families!!!
With LOTS of Hope, Love, and Faith,
♥
When I was little and just finding out about my CHD and what it all means I had nightmares. I had these nightmares for years. I remember my dad sleeping on my bedroom floor so I could fall asleep without being scared or if I woke up someone was right there. My dad didn't do this all the time, but most nights he did. As I got older I developed alot of worries about everything not just my CHD. I've been dignosised with an anxiety disorder about a year ago. It came as no surprise to me as I've always been a parnoid worrier. Coping with it has been hard.
I've always have had things to cope especially the past couple of years dignosised with SVT's (fast heart rate) and muscle spasms along with eye surgery, a bad allergic outbreak, an ER visit, my parents divorcing, my cousins house burning down, my beloved great-grandma dying, etc. all in 5yrs.!!! BUT I've taken things in stride. I'm still holding onto faith...
It’s finally August which means my birthday is fast approaching! I’ll be 22 on the 25th of this month! That is a big milestone in the CHD world. Am I fearful or what my future might hold, absolutely, but I’m very grateful to have another birthday. I will continue to share my CHD story and raise awareness the rest of my life. I will also continue to live my life to the fullest with lots of smiles, love, laughter, tears, frowns, and trying not to have any regret!!! =D
**You know a lot of CHD parents tell me and other CHD adults how they are fearful of letting their child go as they grow up, needless to say ALL parents do, but even more so with a CHD kid. They worry all the time (what parent doesn’t) and they want to make sure they are protected (again what parent doesn’t). The point is CHD parents seem to want to overdo it more with their CHDer, understandable as my mom did… BUT we CHDers want to be treated as much as regular kids as possible… SO CHD parents: Let them be KIDS, let them LIVE, let them EXPERIENCE things... sure there will be times where they will test you (we are good at that), BUT we were given this heart to LIVE, LEARN, LOVE, GIVE, and TEACH like others can’t! So, let us be US and TEACH them their limits, but don’t go overboard… as I heard from one heart mom: stop asking “why”, you’ve got ONE life to LOVE so LIVE it!!!**
...IN OTHER NEWS: As for what I’ve been up to lately, not too much. Things have been crazy busy now and then, then slow other times… that’s how my summers usually go. Last week my bf and I helped my mom out with her 2nd garage sale of the summer. Then, my boyfriend, Chris, did go for Marine weekend training this past weekend. Sunday my mom and her bf cooked a whole bunch of yummy food and we had a BBQ! I haven’t heard from Medicaid about a hearing date, ugh. I did get my cardiologists letter, to help me get Medicaid, in the mail last week. It was a short, but good letter. I need to write him a “Thank You” letter (or maybe I already did… that’s bad that I don’t remember LOL). Today I found out I got a huge Pell Grant to help my pay my College tuition this year. I was happy about that! Other, than that I’ve been getting ready for my bday, my brother’s gf’s baby shower, and a small trip I’m going to take in Sept (more about that later). My health has been great and I pray it continues to stay that way as I have no Health Insurance.
A HUGE Thank You for all the messages of support, e-mails, and much heard prayers!!! You know it ALL means a lot to me and puts a smile on my face!!! =D
That’s it for now… Sending many **Heart Hugs** and Blessings to everyone!!! I continue to pray for SO many kiddos , adults, and their families!!!
With LOTS of Hope, Love, and Faith,
♥
Thursday, July 23, 2009
Lots of Tidbits!!!
As for me getting Health Insurance, I got a letter in the mail last week about my Medicaid. Ready to hear this?... I got DENIED!!! Yes, I did!! As frusterated and angry that I was I called the person on Medicaid caseworker (who is different from the person who helped me get my papers together) to talk to her. She said she could not help me, all she could do was tell me why I was denied and what I can do about it. SOOO WHY WAS I DENIED?!?!? Well, the Mediciad Company looked at ALL my medical records they recieved and agreed that my heart and back issues will NOT last MORE than 90days and that I should be able to get full-time employment!!! EXCUSE ME!?!? Last time I checked my CHD was a chronic illness and my scolisis will never get any better. SOOO, what I have to do is fill out papers that I recieved yesterday stating that I would like a hearing infront of a judge to appeal their decision to deny me Medicaid. I will get a hearing court date in 2-3months! Yup, you heard me right! I also e-mailed my Cardiologist about the situation and he is writing a letter on my medical behalf on why I need Health Insurance to I can give it to the judge the day of my hearing. On top of that, I have to cancel my Cardiology appointment AGAIN!! Looks like I would see him till the end of this year, at best!! I pray my hear health continues to do really well!! Please, pray for me. And if anyone has any tips or advice that I could use, please let me know. Thank You for letting me vent and keeping me in your prayers!!
In other news, my summer continues to be crazy busy. My 22nd birthday is fast approaching and I can't believe another year has gone by, but I reflect on that more later. I have been relaxing and enjoying it as much as I can (I'm getting over a small cold as of right now though nothing worrisome), but I've also keep getting thrown stressers that I'm trying to handle the best way I can. If it's not one thing, it's another... such is life. My boyfriend, Chris, and I have been enjoying are time together as we know it will be less when the Fall Semester starts. I just continue to be grateful for everyday even though it can be hard as everyday doesn't turn out so great.
A few nights ago I watched a movie called “Something the Lord Made” which is a movie based off true events on how the first open heart surgery to save “blue babies” like myself came about. For those who don’t know, the first open heart surgery done was the BT Shunt. It is a very intense, but touching movie that I recommend CHD parents, CHDers, Non CHD parents and CHDers alike to watch. I was tearing up at the end and it made me reflect on how far science has come as well as how grateful I am that one doctor decided to find a way to save CHDers when everyone else wrote us off as doomed.
That's about it for right now. I continue to pray for SO many families!!! I Thank You ALL for reading my blog, the prayers, and the messages. They mean alot to me!!! =D
Don't forget about my CHD Montage request:
**My CHD Montage Request:**
I'm still in need of pictures for my new CHD Montage. If you'd like to be apart of it I'll need:- A picture(s) of your child (or you)... any kind you want it fine.- Your child's (or your) name, birthday (and angel date if they passed), and CHD
-You can e-mail me at: Sweeetie2516@aol.com Thank You!!! =D
Until next time... May God Comfort, Guide, and Bless you on your Journey!!!
With LOTS of Hope, Love, and Faith,
♥
In other news, my summer continues to be crazy busy. My 22nd birthday is fast approaching and I can't believe another year has gone by, but I reflect on that more later. I have been relaxing and enjoying it as much as I can (I'm getting over a small cold as of right now though nothing worrisome), but I've also keep getting thrown stressers that I'm trying to handle the best way I can. If it's not one thing, it's another... such is life. My boyfriend, Chris, and I have been enjoying are time together as we know it will be less when the Fall Semester starts. I just continue to be grateful for everyday even though it can be hard as everyday doesn't turn out so great.
A few nights ago I watched a movie called “Something the Lord Made” which is a movie based off true events on how the first open heart surgery to save “blue babies” like myself came about. For those who don’t know, the first open heart surgery done was the BT Shunt. It is a very intense, but touching movie that I recommend CHD parents, CHDers, Non CHD parents and CHDers alike to watch. I was tearing up at the end and it made me reflect on how far science has come as well as how grateful I am that one doctor decided to find a way to save CHDers when everyone else wrote us off as doomed.
That's about it for right now. I continue to pray for SO many families!!! I Thank You ALL for reading my blog, the prayers, and the messages. They mean alot to me!!! =D
Don't forget about my CHD Montage request:
**My CHD Montage Request:**
I'm still in need of pictures for my new CHD Montage. If you'd like to be apart of it I'll need:- A picture(s) of your child (or you)... any kind you want it fine.- Your child's (or your) name, birthday (and angel date if they passed), and CHD
-You can e-mail me at: Sweeetie2516@aol.com Thank You!!! =D
Until next time... May God Comfort, Guide, and Bless you on your Journey!!!
With LOTS of Hope, Love, and Faith,
♥
Friday, July 10, 2009
Lots have been going on!!
Hello!!
Sorry I haven't had a chance to post lately, my summer has been crazy busy. I have gotten a chance to spend alot of time with my sweetheart of a boyfriend, Chris, though so that is always a plus! =D
Since, my last post my boyfriend took me to a waterpark, Cabela's, and Russell Stover's (chocolate, YUM!) in Dundee, MI. We had alot of fun. Here are some pictures:
At Russell Stover's:
At Cabela's:
Before we left Dundee:
I've also been struggling with getting Health Insurance for the past three months. To get all the details you can go to my carepage (hopelovefaith). It has been really frusterating for me especially since I have a CHD and NEED Health Insurance. I suppose to get onto disablilty Medicaid in the next few weeks. Praying I do.
Last Thursday morning I was in the ER of Children's Hospital as I was in alot of stomach pain and having alot of blood in my stools. I had to get IV fluids as I was dehyraid and I was tested to see what was up. I had a stomach infection, most likey from something I ate. They never found out excatly why I was bleeding in my stools, but they think I rip something while pooping. I have been over it for four days now and no blood. Praying nothing comes up and I stay healthy. I was only in the ER for 5 hours, but I would have rather have not been there at all. Luckly, I'm fine... I know God was with me. If it wasn't for God, my awesome boyfriend, and my mom I don't think I would have made it through that horrible stomach infection.
On another note, I was inspired to write a poem yesterday. I was inspired not only by my CHD Journey, but by all CHD Journeys. Hope you like it!
How? Why?
People keep looking and asking
“How do you do it?”
“How do you keep living like this?”
I always say “One day at a time”
“I’m on a mission from God…
I will complete it; I have this heart for a reason.”
People may or may not understand
But I don’t need them too
God makes no mistakes
I know why I was given this heart
To teach people how to live
To live like every day was my last
To love and to be loved
To help spread the awareness
To show people how to care
To give everything I’ve got
To let everyone know that every day is blessed
Tomorrow is not promised
My heart may be half and very mended
But I don’t regret anything
I’m blessed, I’m grateful, I’m happy
So smile, laugh, love, give, and live
If I can do it, if every single heart kid can do it
So can you!
Mended hearts are here on earth to show us
Show us life is to never be taken for granted
Look at their happiness and smiles
They live to the fullest through every trial
On a mission they are from God
No matter the time they have here
They fulfill their duties with all their heart
They are miracles that bless us
Listen to their heart it tells a story
And learn from the their journey
Never lose Hope, Love, and Faith
I’m a mended heart on a mission
How do I do it?
I just keep living, this is my life
By: Lauren, a CHD Survivor (July 09)
Lastly, I would love to do another CHD video with CHD kids, adults, and angels so if you'd like to be part of it I'll need:-A picture of your child (or you)-Your child's (or your) first name, bday, and CHD(s)Then, send me an e-mail at Sweeetie2516@aol.com
Thank You!!!
Thank You ALL again for reading my blog, the love, messages, and prayers!!! They ALL me so much to me!!! =D
Many **Heart Hugs** and Blessings sent your way!!!
With LOTS of Hope, Love, and Faith,
♥
Sorry I haven't had a chance to post lately, my summer has been crazy busy. I have gotten a chance to spend alot of time with my sweetheart of a boyfriend, Chris, though so that is always a plus! =D
Since, my last post my boyfriend took me to a waterpark, Cabela's, and Russell Stover's (chocolate, YUM!) in Dundee, MI. We had alot of fun. Here are some pictures:
At Russell Stover's:
At Cabela's:
Before we left Dundee:
I've also been struggling with getting Health Insurance for the past three months. To get all the details you can go to my carepage (hopelovefaith). It has been really frusterating for me especially since I have a CHD and NEED Health Insurance. I suppose to get onto disablilty Medicaid in the next few weeks. Praying I do.
Last Thursday morning I was in the ER of Children's Hospital as I was in alot of stomach pain and having alot of blood in my stools. I had to get IV fluids as I was dehyraid and I was tested to see what was up. I had a stomach infection, most likey from something I ate. They never found out excatly why I was bleeding in my stools, but they think I rip something while pooping. I have been over it for four days now and no blood. Praying nothing comes up and I stay healthy. I was only in the ER for 5 hours, but I would have rather have not been there at all. Luckly, I'm fine... I know God was with me. If it wasn't for God, my awesome boyfriend, and my mom I don't think I would have made it through that horrible stomach infection.
On another note, I was inspired to write a poem yesterday. I was inspired not only by my CHD Journey, but by all CHD Journeys. Hope you like it!
How? Why?
People keep looking and asking
“How do you do it?”
“How do you keep living like this?”
I always say “One day at a time”
“I’m on a mission from God…
I will complete it; I have this heart for a reason.”
People may or may not understand
But I don’t need them too
God makes no mistakes
I know why I was given this heart
To teach people how to live
To live like every day was my last
To love and to be loved
To help spread the awareness
To show people how to care
To give everything I’ve got
To let everyone know that every day is blessed
Tomorrow is not promised
My heart may be half and very mended
But I don’t regret anything
I’m blessed, I’m grateful, I’m happy
So smile, laugh, love, give, and live
If I can do it, if every single heart kid can do it
So can you!
Mended hearts are here on earth to show us
Show us life is to never be taken for granted
Look at their happiness and smiles
They live to the fullest through every trial
On a mission they are from God
No matter the time they have here
They fulfill their duties with all their heart
They are miracles that bless us
Listen to their heart it tells a story
And learn from the their journey
Never lose Hope, Love, and Faith
I’m a mended heart on a mission
How do I do it?
I just keep living, this is my life
By: Lauren, a CHD Survivor (July 09)
Lastly, I would love to do another CHD video with CHD kids, adults, and angels so if you'd like to be part of it I'll need:-A picture of your child (or you)-Your child's (or your) first name, bday, and CHD(s)Then, send me an e-mail at Sweeetie2516@aol.com
Thank You!!!
Thank You ALL again for reading my blog, the love, messages, and prayers!!! They ALL me so much to me!!! =D
Many **Heart Hugs** and Blessings sent your way!!!
With LOTS of Hope, Love, and Faith,
♥
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