Quick Cardio Appt. Update!

Sorry it has been awhile since my last update! We just moved into an apartment one Monday night and we don't have internet yet. I'm using the internet at the Apartments Office Lobby.

Most of you know that I had my yearly cardiology appointment before I left Michigan. This year was the first year at a different hospital, I moved to Mott's Children's Hospital. I'm now seeing Dr. Cott's who is not only a Pedatric Cardiologist, but he specializes in adults with CHDs!! :D He is an amazing Cardiologist; super nice and very informational!

Here is a quick low down of how my appointment went and I'll do more detail when I get internet next week:
-He told me about my Fontan surgery in detail, which I've never heard before. I had a very unusal Fontan he says, but it is working well.-He told me I'm in the 15-20% of old Fontan patients that are doing really well! Yay!-I didn't need an echo because he saw the one my old Cardiologist did on my about 9 months ago and said it was really good.-He gave me upfront statistics and his worries about my future for me. The only main concern is my 60% chance of developing rhythm problems. If I develop these then an ablation and possible Fontan revision would be in my near future! Praying that doesn't happen, but what ever my fate is I will deal with it then.-As a precaution, I will have my first Cardiac MRI in Decemeber when I come back to Michigan. Hoping that will go well. He says he just wants to know where my heart stands from a different view point which is understandable.-I will most likely be having a heart catherization in the next 2yrs to check my heart pressures, but that is not a prioity right now.-We talked about me ever having kids and it looks like I may be able to have at least one because I'm doing well. If I continue to do well then the risks to me and the baby are low. I have about a 1 in 20 chance of passing on a CHD to my child. So, we will come back to this subject later.

That's about it right now! Thanks SO much for all the messages of support and much heard prayers! They mean alot to me! The CHD community is like a second family to me! Thank you! ♥

Keeping SO many in my thoughts and prayers!

With LOTS of Hope, Love, and Faith,
♥

My Head had been Spinning!

This is a quick update... My head has been spinning lately!This past Thursday my boyfriend, Christopher, found out that his start date for his internship at Intel in Folsom, California (about 20mins from Sacramento) has been moved up to May 3rd! So we are leaving (by car) on Wednesday night! Only two days away! We have been busy packing, studying for finals, and visiting family.

I have my last two final tomorrow and I'm very nervous! Then Wednesday Morning I have my Cardiology appointment at the Cardiovascular center across from Mott's Children's Hospital. I'm nervous about seeing a new cardiologist, but I had to make the move to see a Pedatric Cardiologist that specializes in adults with CHDs. Prayers for both of these would be appreciated. As well as prayers for a safe drive out to California. Thanks SO much!

This is hard for me as I've never been this far from family before, but it will be a new experience for me and I'm ready to take on a new journey in my life. Wish me luck!

If you and or if you know any other CHD families near Sacramento, California let me know! My e-mail is: lceleskey 87 (at) gmail (dot) com (just make sure you delete the space between y & 87 and put an @ and . I don't like e-mail spam so I have to write my e-mail out like that)

Thanks so much for all the much heard prayers and support!

I will try to update in about a week about the drive to CA, my cardiology appointment, and much more!

With LOTS of Hope, Love, and Faith,
♥

Hi Everyone! Time for an Update!

Hello everyone!

Hope all is well! I’ve been busy with school and life lately as usual, but I have some time and wanted to update all of you.

I’ve been doing ok. Last Thursday I started to have trouble breathing and I had a panic attack. I went into shock meaning I started shaking and turned purple. Took me a few hours to totally calm down! My loving boyfriend, Chris, came right away when I called him. I was at school and so was he, but he was in class in a different building. Chris missed the last half of his class for me, that’s love. I went to my primary doctor on Friday and everything is fine. I have anxiety issues (I already knew that), a cold with congestion, and minor allergies. I feeling better every day and trying to stay more calm. I guess the school and life stress go to me. I’ll be ok though. It has been a week and I’m still getting over the cold with congestion, but doing better. There are just so many college kids sick in my classes that I think it has taken me longer to recover. I stayed home from school today because there was really nothing going on in my classes and the two I had today had the most sick kids… so I though why expose myself to more germs when my body is trying to recover!

In other news, I made the switch over from Children’s Hospital of Michigan to Mott’s Children’s Hospital. I have everything set in place and my cardiology appointment is for April 28th at 10:30am, I’m nervous about seeing a new cardiologist. The one I’m going to see is not only a Pediatric Cardiologist, but specializes in adults with CHDs which is different than my old Cardiologist. I’ve seen one cardiologist my whole life, so I’m hoping things go well. Prayers would be nice. Thanks so much!

I am dealing with a problem with Children’s Hospital of Michigan. It seems like they have destroyed all my Medical Records before 1994! Now, I don’t know the law, but I believe they are still suppose to have my records on microfilm or on a disk of some sort. I’m still looking into everything, but all this has really upset me and has got me angry too. All the records before 1994 are some of the most important Medical Records as it includes my heart surgeries. Wish me luck that I find something or get some answers.

I have my last week of classes next week and finals the week after. I officially have 1 paper and 3 tests left before I’m done with this semester! I’m so excited! I’ve worked really hard this semester and I’m pretty pleased with how my grades are coming out. :D

I have big life change that I want to share with everyone… I will be going to Folsom, California (20-30mins out from Sacramento) at the end of May. This was kind of sudden as alittle over a month ago my boyfriend, Chris, said he wanted to apply for internships at the company Intel before he graduates college so he has a better chance at a great job. He applied to over 30 positions that were located either in California, Washington, or Oregon. He got one reply back and after one phone interview he got a 6 month internship! I’m going over with him for at least the first 3 months. I support him and I love him and I’m really happy for him! If anyone know someone who lived about the Folsom or Sacramento, CA area let me know! I still want to be involved in the CHD Community!

Well, that’s about it right now! I will post after my Cardiology appointment. I'm going to end this post with two old pictures of me I've never shown before, one in which I didn't know my mom had even taken as well as a Picture Montage of my CHD Journey.

This is me at 5 weeks old, before I was diagnosised with Congenital Heart Disease

This is me a day or two after my emergency heart catherization to save my life at 11wks old. It was just a few days after I was diagosised with a CHD. A week ago was the first time I remember seeing this picture, didn't even know my mom took it.

This is my Picture Montage of my CHD Journey thus far that I finished a week ago. Enjoy. **Make sure you turn off my music player at the bottom before you play my Montage**

***Here is a link to my Montage for my e-mail readers: http://www.onetruemedia.com/shared?p=98bec4b7f6c0fc2cac50af&skin_id=701

Make an on-line slide show at www.OneTrueMedia.com

Keeping so many CHD kiddos, adults, and families in my prayers. Sending you ALL **Heart Hugs** and Blessings! Again, ALL the support, prayers, and messages mean so much to me! Thank You!! ♥

With LOTS of Hope, Love, and Faith,

♥