This is Londan. He has Hypoplastic Left Heart Syndrome (the opp of me). He was 10 when I met him and his family for lunch. We got along very well. He is full of life and an overall spunky kid. He thought it was pretty cool I had scars on my chest too. The thing that touched me was when his mom told me that he said in the car on the way home that since I’m missing the right side of my heart and he is missing his left, that together our heart makes a whole heart. Beautiful. Today Londan is 12 years old, thriving, still full of life, and still full of smiles.
This is Megan. She has Tricuspid Atresia, Hypoplastic Right Heart Syndrome like me. She was 6 when I met her and her family. She was very shy at first, but that is ok… actually it took me back to my childhood as I was super shy too. She opened up towards the end of dinner and hopped on my lap. She can’t wait to meet me again and I can’t wait to meet her again. Megan is just full of life! Today she is in 1st grade, doing awesome, living life, and will be 7 soon.
<3 ~ <3
This is Kyleigh. She has Tricuspid Atresia, HRHS like me. She was 8 when I met her and her family. I had known her mom for a year before we got to meet in person. Her mom, Crisse, and I talked ALL the time on the phone and I talked to Kyleigh a lot on the phone to… so when we FINALLY got to meet in person… it was AMAZING! I love Kyleigh like a little sister and her mom, Crisse, has become one of my best personal friends. I wish we lived closer to each other though… but we talk all the time via phone. Kyleigh is so full of life and just a spit fire! Love her! She is 9 years old now and considers me her big heart sister forever… and that makes my heart melt. Kyleigh is full of life and full of smiles!
<3 ~ <3
This is Hope. She has Hypoplastic Left Heart Syndrome (opp of me). I knew her mom via internet since before Hope was even born! Hope’s mom found my blog, left a comment, and from there we have had a nice friendship and I feel so special I could offer her hope for Hope. Hope was almost 2 when I met her. She was a tiny thing, which I was tiny too. But boy lots of energy, curiosity, and love for life is packed into such a small package. She is on the go! My favorite moment was when I showed her my scar, than pointed to hers… she knew as she pointed at mine than at hers. She is 2 now and doing amazing despite some weight gain issues.
<3 ~ <3
This is Bayden. He has “pink” Tetrology of Fallot & 3 other CHDs. He was 2 when I met him. He is a spunky little thing! He is curious, adventurous, yet gives you a smile that melts your heart. Brittany you have a ladies’ man too hehe. ;) Bayden likes what he likes and has a kind spirit. He enjoyed sitting on my lap and taking pictures with me. He is full of life and full of energy! Amazing!
This is Jilliana. She has HRHS like me. She was 2 when I met her. She is adventurous, curious, and full of energy. She smiles a lot and knows what she wants. She was so sweet and enjoyed sitting on my lap… she seemed to like me. Jilly has a love for life and exploring. A cute moment during lunch is her eyes lightening up at the big cookie we gave her, yet she enjoyed eating my chips more… she sure loves to make friends… what a cutie. Amazing little girl she is.
<3 ~ <3
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